Cholangiocarcinoma-UK
Mission Statement
Cholangiocarcinoma-UK, an affiliate of the British Association for Study of Liver Disease (BASL), is a multi-disciplinary Special Interest Group (SIG) of clinicians, scientists and patient advocates whose purpose is to facilitate collaborative research, enhance service development and raise awareness of Cholangiocarcinoma.
Aims of Cholangiocarcinoma UK
• Be the recognised leading authority on Cholangiocarcinoma in the UK
• Become affiliated to other relevant major national organisations e.g. BASO, BSG
• Facilitate basic science and clinical research as well as sample collection, including for biomarker development
• Improve the pathway to collaborative clinical trials and opportunities for research funding
• Update national guidelines and advise on policy and best practice
• Optimise and standardise clinical management across the country
• Monitor epidemiological trends accurately.
Steering Committee
Chair | Professor Shahid Khan | Imperial College, London |
Deputy chair/secretary | TBC | |
Patient advocate | Helen Morement | AMMF – The Cholangiocarcinoma Charity |
Basic science representatives | Professor David Bates | University of Nottingham |
Dr Luke Boulter | MRC Human Genetics Unit, Edinburgh | |
Dr Chiara Braconi | University of Glasgow | |
Dr Sheela Jayaraman | University of Birmingham | |
Endoscopy representative | Professor Steve Pereira | University College / Royal Free Hospital, London |
Hepatology representative | Dr Simon Rushbrook | Norfolk & Norwich University Hospitals |
Clinical oncology representative | Professor Maria Hawkins | University College, London |
Medical oncology representatives | Professor John Bridgewater | University College, London |
Professor Juan Valle | Christie NHS Foundation Trust / University of Manchester | |
Pathology representative | Dr Tim Kendall | University of Edinburgh / Royal Infirmary Edinburgh |
Surgery representatives | Professor Brian Davidson | Royal Free Hospital, London |
Professor Nigel Heaton | King's College Hospital, London | |
Mr Hassan Malik | Aintree University Hospital | |
Trainee representatives | Dr Pilar Acedo | University College, London |
Dr Leonard Marc Quinn | University of Liverpool | |
Dr Isioma Egbuniwe | University of Nottingham |
Resources
Annual reports
Annual report 2018-19 - Download Annual report_2018-19_CCA-UK.pdf.
1st meeting - 7 December 2018
Report - Download BASL_BSG report_Summary_Outcomes_CCA-UK Meeting 7 Dec 2018_FINAL.pdf.
Welcome presentation, Shahid Khan, St Mary’s Hospital, London - Download Welcome.pdf
Presentation on the patient/healthcare professional partnership, Helen Morement, AMMF - Download The patient_healthcare professional partnership.pdf
Presentation on Epidemiology and aetiology: What we don’t know & how can we find out, Shahid Khan, St Mary’s Hospital, London - Download Epidemiology and aetiology_What we dont know and how we can find out.pdf
Presentation on Ensuring quality: Centres of “excellence/expertise”?, Hassan Malik, Aintree University Hospital Download Ensuring quality_Centres of excellence and expertise.pdf
Presentation on Medical oncology: The unmet needs and how we meet them, John Bridgewater, UCL & Juan Valle, Christie NHS Foundation Trust - Download Medical oncology_The unmet needs and how we meet them.pdf
Presentation on Clinical oncology: Establishing novel roles in CCA therapy, Maria Hawkins, University of Oxford - Download Clinical oncology_Establishing novel roles in CCA therapy.pdf
2nd meeting - 14 November 2019
Presentation on Cholangiocarcinoma and liver fluke infection in Lao PDR, Peter Odermatt, Swiss Tropical and Public Health Institute - Download CCA and Liver Fluke Infection in Lao_P Odermatt.pdf
Presentation on Universal tumour antigens in primary liver cancers: Cholangiocarcinoma and Hepatocellular carcinoma are differentUniversal tumour antigens in primary liver cancers: Cholangiocarcinoma and Hepatocellular carcinoma are different, Ollie Rupar, University of Plymouth - Download Universal tumour antigens in primary liver cancers_Ollie Rupar.pdf
Presentation on Single molecule detection of osteopontin in nanopores using DNA molecular carriers, Micol Damiani, Imperial College London - Download Single molecule detection of osteopontin in nanopores_M Damiani.pdf
Presentation on the investigation of virus-driven intrahepatic Cholangiocarcinoma through dysregulated hepatic differentiation, Alex Kilvington, University of Leeds - Download Virus-Driven Intrahepatic CCA_A Kilvington.pdf
Presentation on the role of mesenchymalcells in Cholangiocarcinoma, Mireia Sueca Comes, University of Nottingham - Download Role of Mesenchymal Cells in CCA_M Sueca-Comes.pdf
Presentation on non-coding RNAs and the biology underpinning potential new precision medicines in Cholangiocarcinoma, Chiara Braconi, University of Glasgow - Download RNAs and biology underpinning potential new precision medicines_C Braconi 1.pdf
Presentation on Delphi process on next key questions in basic science of Cholangiocarcinoma, Shahid Khan, Imperial College London - Download Clinical and Research Priorities in CCA_S Khan.pdf
Patient representation
The AMMF is represented on the CCA-UK Steering Committee and is the UK’s only cholangiocarcinoma charity - http://ammf.org.uk/.
Global CCA Alliance
The Global Cholangiocarcinoma Alliance (GCA) has united to establish a global voice in CCA through community collaborations. The GCA has a shared vision to raise the awareness of CCA, in order to improve prevention, survival and the quality of life of CCA patients globally. CCA-UK is a partner in this Alliance. For more information, visit https://globalccaalliance.com/en.
News - CCA-UK 2024 Annual Conference
Date: 2nd February 2024
Venue: Hallam Conference Centre, London.
This meeting will bring together a multi-disciplinary expert faculty for a one-day in-person event to update all on the latest developments in cholangiocarcinoma nationally and internationally.
The conference will provide an opportunity to
• learn the latest advances in clinical care, guidelines and research
• find out about novel treatments on the horizon
• network, discuss, contribute and be a part of the future of cholangiocarcinoma research and treatment
View a programme > HERE
Registration: Only £50 to attend in person, including lunch and refreshments
Register HERE
If you have any questions contact cca-uk@basl.org.uk .