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Aug
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We would like to invite all members with an interest in the study of the liver to take part in a Delphi process to develop a Quality Standards Framework for management of liver disease in the UK.
A multi-disciplinary group was set up in order to develop quality standards for the management of people with chronic liver disease, in order to improve and standardise liver disease care across the UK. The group comprised hepatologists, gastroenterologists, trainees, specialist liver nurses, pharmacists, physiotherapists and dieticians, and also included patient/lay representatives. A writing group has developed a set of proposed standards, and we would now like to seek involvement from the wider community of professionals involved in the care of patients with liver disease.
The process will consist of a series of Delphi rounds responding to the proposed standards, including ranking them in terms of importance, relevance and reach.
On behalf of the BSG, BASL and BLNA, we would like to invite all those with interest in the study of the liver to participate in this process.
Participants must be able to commit to the following:
- Completing multiple rounds of Delphi survey (2-3 rounds expected), over the next few months.
All members of the Delphi panel who participate in all rounds will be acknowledged as co-authors on any subsequent publication.
Jul
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The UK National Screening Committee’s (UK NSC’s) 2024 Annual Call for Topics is now open.
During the 3-month annual call, which closes on 30 September 2024, any individual or organisation can submit proposals to the UK NSC for:
- new screening topics
- modifications to, or the ceasing of, existing screening programmes
- early updates to screening topics that the UK NSC has considered in the past 3 years
Proposals can cover population, targeted or risk-stratified screening programmes.
Please refer to the UK NSC annual call: submitting a screening proposal guidance before making a submission.
The 2024 annual call runs from 1 July 2024 to 30 September 2024.
Please email uknsc@dhsc.gov.uk if you have any queries about the annual call process.
Jul
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The European Medicines Association (EMA) issued a statement on Obeticholic acid (Ocaliva) for the treatment of primary biliary cholangitis (PBC) on 28 06 2024.
The EMA has recommended that the marketing authorisation for Ocaliva be revoked in the European Union following results of the COBALT trial, 747-302 . In the UK EMA recommendations do not apply, as we are regulated by the Medicines and Healthcare products Regulatory Agency (MHRA). At present, there are no changes to the recommendations on use of Obeticholic acid in PBC from the MHRA or the National Institute for Health and Care Excellence (NICE) and so current prescribing practices should NOT change.
We shall update the UK liver community if there are any changes to the recommendations on the use of Obeticholic acid.
Please find the link to the longer statement to follow > Here .
Jun
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The BASL ArLD special interest group has just launched a national audit (ALERT UK) on the in-patient management of patients with alcohol related liver disease (ArLD). We are keen to get as many sites as possible involved to get a representative sample of current care in the UK.
'ALERT UK' is multicentre retrospective audit and has been endorsed by the BSG, BASL and Torch UK.
In short, we only require data from 20 patients from each site and have a 'pre-coded' spreadsheet based on HES codes to send to your hospital data team to easily identify the patients for inclusion.
All contributors will be named as PubMed citable authors on any publications.
Further information including the full audit protocol can be found here on the BSG website :
https://www.bsg.org.uk/news/alcohol-related-liver-disease-audit-alert-uk
Each site can have up to 4 audit members made up of any of the clinical team involved in the care of inpatients with ArLD ( eg doctors of any grade, nurses, members of alcohol care team, allied health professionals etc)
If you are interested please register your site via this link: https://forms.gle/dj7KKczb9FQ6
Closing in mid-July.
If you have any questions please contact us : alertaudituk@gmail.com .
Please spread the word in your region if you think of others who may be interested in participating.
Jun
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BASL have produced this survey about liver disease service provision in the UK.
We would be extremely grateful if you could complete the short survey (which should take no longer than 10 minutes) using the link below.
We would ask that only one response is completed for each hospital to avoid duplication.
This is part of a larger project which builds on the Lancet Liver Commission, aiming to develop a better understanding of the needs of patients requiring liver disease services across the whole of the care pathway, from early identification to specialist treatment. The national Hepatobiliary & Pancreas Clinical Reference Group (chaired by Professor Richard Aspinall) is leading work to bring about the transformation of liver disease services, reducing inequalities in terms of access, uptake and outcomes and the response to this survey will be used as supporting evidence. As Integrated Care Boards take on more responsibility for commissioning local services, the findings from this survey will clarify where there are gaps in service provision and where there are opportunities to strengthen networks to improve population health outcomes.
Although we are asking for your email address, that is purely for administrative purposes. All responses will be confidential and a final report will be produced which will not enable any individual clinicians or hospitals to be identified.
The final report will be available on the BASL website but if you would like a copy emailed to you separately, please contact angeline.walker@nhs.net .
If you have any queries about the survey, please email michael.allison6@nhs.net or angeline.walker@nhs.net .
Thank you for taking the time to respond.
Please click > HERE to access and take part in the survey.
Thank you.
May
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The Viral Hepatitis Fellowship and Medical Grants programme will support innovative projects and initiatives that ultimately lead to an improvement in awareness, diagnosis, linkage to care and/or management of people living with viral hepatitis (B, C and Delta).
Further information on the Viral Hepatitis Fellowship and Medical Grants Programme can be found on Gilead’s website Here .
The application window for Viral Hepatitis is open from Monday 18th March to Friday 28th June 2024.
Should you have any questions regarding the process, application form, or the eligibility of your project, please email gileadfellowship@axon-com.com .
May
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Liver Cirrhosis Research
Calling all people living or working with liver disease - we need your help!
What do you think are the most important questions for liver cirrhosis research?
Scan the code in the flyer below to complete a 10 minute survey:
Download JLA-Liver-Cirrhosis-A4 Poster-May24.pdf
Or use this link: https://www.surveymonkey.com/r/Liver-cirrhosis-research
Cases of liver disease are increasing in the UK and although a lot of research is being done, we have not developed a new treatment for liver cirrhosis in the last 20 years.
Mar
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A new study is recruiting now. The research will look at the CirrohCare system for managing and treating decompensated cirrhosis. The system uses smart devices to let people check their condition at home. Doctors can see the data in real time with algorithms helping to spot potential problems early. A preliminary study found positive responses from patients and a reduction in hospital treatment.
Find out more
British Liver Trust
Mar
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Join this webinar on Tuesday, 9th April at 5pm for an exclusive update from the UK Liver Alliance, a coalition of more than 30 organisations who are committed to improving liver health.
From pioneering efforts in early detection within primary care to initiatives aimed at reducing variation in hospital care and driving policy change, this event promises insights that are both informative and inspiring. Speakers include Professor Phil Newsome, Dr Rebecca Jones, Dr Andrew Yeoman and Dr Helen Jarvis.
Mar
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The SHiNE-UK study (Surveillance and Care for HCC: A National Evaluation) is now live.
Further information and all study docs are available on REDCap dashboard here; www.REDCap.link/SHiNE-UKdashboard.
Do you want to help to research an increasingly important clinical question in hepatology? Do you want to get involved in a large national collaborative project with PubMed-cited collaborative authorship?
SHiNE-UK (Surveillance and care for Hepatocellular carcInoma: a National Evaluation) is a multi-centre project aiming to understand HCC surveillance adherence and outcomes, routes to diagnosis and treatment utilisation across the UK.
SHiNE-UK is a trainee-led multicentre retrospective study that is led by the Trainee Collaborative for Research and Improvement for Hepatology (ToRcH-UK) and hosted by Manchester University NHS Foundation Trust. I
This project comprises of 3 threads:
• Survey of the current provision of HCC surveillance and care (site leads only)
• To assess HCC surveillance adherence and outcomes for patients active in surveillance (all sites – projected 20-60 cases per site)
• To assess routes to diagnosis and first line treatment utilisation for incident HCC (network HPB MDT sites only – projected 30-90 cases per site)
All clinicians, including specialist nurses and allied health professionals are encouraged to take part. Local project teams will gather retrospective data between February and July 2024. All data will be submitted anonymously on REDCap. Each site will have a site lead (registrar) with a supervising gastroenterology/hepatology consultant. The study can be registered via your local Audit Department and will not require R&D approval.
If you would like to take part, please access the SHiNE-UK study dashboard which provides the protocol and supporting materials www.REDCap.link/SHiNE-UKdashboard.
Key Dates
27-Nov-2023 - Site registration opens
19-Feb-2024 - REDCap data collection opens
30-Apr-2024 - Site registration closes
31-Jul-2024 - REDCap data collection closes
Download SHiNE-UK Promotional Poster v1.0 04-Feb-24.pdf
If you have any questions, please contact us via committee@torchuk.org. We look forward to working with you on this exciting project!
Best wishes
SHiNE-UK Project Management Group
X @SHiNEUK_study
